Welcome to our website!

It is a place for you to find answers and ask questions.  One of the primary goals of the Neuroblastoma Foundation is to ensure that parents, patients and health care professionals find the information they need to make the best treatment decisions possible for children and adults affected by neuroblastoma.  There is a vast amount of information throughout the internet, much of which is encapsulated in medical jargon that is so complex that even many medical professionals have difficulty in interpreting its meaning.  We are here to help to decipher this information and to make sure you (and your oncologist) understand exactly what it means to you.  From treatment decisions to side effects we have parents and experts that have experienced it all and are willing to distill it for you.

Having walked through neuroblastoma with our own children we bring a different perspective than most.  While we can certainly educate others on trial eligibility criteria and expected side effects, the important piece of knowledge that we bring is perspective.  .  We also aim to help you understand the experience so you know exactly what should be anticipated.  It is the reason we are here - for you and your family.

The Neuroblastoma Foundation is here for research. We are here to hasten the cure. After years of being frustrated by watching donated funds be utilized for projects that had nothing to do with expediting a cure, we decided to develop a system to ensure all donated funds are utilized for research.  100% of every donated dollar earmarked for research is guaranteed to fund meaningful neuroblastoma research.  These funds are not used for administration, marketing, education or any other endeavor.  All research funds are utilized to hasten a cure for neuroblastoma.

That is the way it should be and another important reason that the neuroblastoma foundation is here for you.