Home - The Neuroblastoma Foundation

There is nothing quite as devastating as hearing that word - neuroblastoma. In seconds your world is turned upside down and your normal life is but a distant memory. You are thrust into a confusing world full of fear. Your child has cancer.

We know. We have been there. The Neuroblastoma Foundation is here for you.

Welcome to our website. It is a place for you to find answers and ask questions. One of the primary goals of the Neuroblastoma Foundation is to ensure that parents, patients and health care professionals find the information they need to make the best treatment decisions possible for children and adults affected by neuroblastoma. There is a vast amount of information throughout .. more

Videos Watch videos about neuroblastoma created just for you.

Seminars (next - 2/16/2010) Participate in online seminars on important treatment topics.

Articles Articles on neuroblastoma treatment for patients and families.

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Do you have questions but feel like you have no answers? Do you have a question but have been afraid to ask? Here, you can find the answers.

Join our neuroblastoma forums. Here you can ask questions and get the answers you really need. While you are there, talk with other parents that are going through your very same journey. You will be amazed at what you will find.

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Overview of NANT Clinical Trials - Part 1

Join us for a Webinar on February 16 Space is limited. Reserve your Webinar seat now at: https://www2.gotomeeting.com/register/798308411 Join us on February 16, 2010 for an hour long presentation of Part 1 of the New Approaches to Neuroblastoma Therapy's (NANT) Clinical Trial Series. This seminar will cover the NANT's non-MIBG clinical trials...

Published 8 Feb 2010 8:39 AM by Mark Dungan

Filed under: Zometa, NANT, Fenretinide, Clinical Trials, Judith Villablanca
Why Neuroblastoma Screening Doesn't Work

Late last week I read a great article on *** cancer screening. Of course, I read the article because my little word search of it also included the word ' neuroblastoma .' Regardless, the article brought up some very important points that I think are often missed by parents of a child with neuroblastoma . The subject is this neuroblastoma screening...

Published 26 Jan 2010 8:58 AM by Mark Dungan

Filed under: Neuroblastoma, screening
Neuroblastoma's Shot at $50 million

I received an email late last night from Gavin Lindberg . It was a press release from the DOD (Department of Defense) announcing its Peer Reviewed Medical Research Program ( PRMRP ) funding opportunities for 2010. The announcement stated that the Fiscal Year 2010 (FY10) Defense Appropriations Act provided $50 million to the Department of Defense Peer...

Published 15 Jan 2010 9:01 AM by Mark Dungan

Filed under: Neuroblastoma, PRMRP, DOD
Re: Insurance doesn't pay for clinical trials...help?

We are in Michigan, so I am sure there are variances, but I will tell you of our issues during our fight. Our insurance also does not pay for anything that is considered experimental. Therefore, anything outside of current protocol is not covered. I suggest you not waste too much time appealing with your insurance company, as they cover what they are...

Published 30 Oct 2009 9:36 AM by Dawn
Insurance doesn't pay for clinical trials...help?

We are interested in enrolling our son on ANBL0032 (antibodies) but our insurance doesn't pay for clinical trials. Has anyone been through this and have any advice? We are prepared to appeal but I was just hoping for some advice. I worry since so much of relapse treatment is done through clinical trials, not to mention the antibody trial. We're...

Published 19 Oct 2009 12:25 PM by Katie
I-MIBG Therapy for Neuroblastoma

On August 26, 2009 Ken DeSantes , M.D. gave a presentation at the University of Wisconsin School of Medicine and Public Health on MIBG Therapy Although this presentation was not meant for parents of children with neuroblastoma or their caregivers it is a very solid overview of MIBG therapy. It is definitely worth watching if you are considering MIBG...

Published 18 Sep 2009 3:27 AM by Mark Dungan

Filed under: Ken DesAntes, MIBG
Re: OMS and survival rate

We talked to Lukas doc about going to see Dr. Frazatelli, but decided to stay in TX. She has treated OMS children before and has done everything we would have had done in IL. Lukas did have Cytoxan a couple of times during his chemo regimen and we didn't see much of a difference with it, but he also had the huge tumor in his sphenoid cavity still...

Published 16 Sep 2009 10:35 PM by themacdonnells
Overview of NANT Clinical Trials - Part 1

Join us for a Webinar on February 16 Space is limited. Reserve your Webinar seat now at: https://www2.gotomeeting.com/register/798308411 Join us on February 16, 2010 for an hour long presentation of Part 1 of the New Approaches to Neuroblastoma Therapy's...

Published 8 Feb 2010 8:39 AM by Mark Dungan

Filed under: Zometa, NANT, Fenretinide, Clinical Trials, Judith Villablanca
Structural and functional characterization of a novel FE65 protein product up-regulated in cognitively impaired FE65 knockout mice.

Related Articles Structural and functional characterization of a novel FE65 protein product up-regulated in cognitively impaired FE65 knockout mice. J Neurochem. 2010 Jan;112(2):410-9 Authors: Cool BH, Zitnik G, Martin GM, Hu Q FE65 is a multi-modular...

Published 6 Feb 2010 4:40 AM by pubmed: neuroblastoma

Filed under: J Neurochem
A novel mTOR activating protein protects dopamine neurons against oxidative stress by repressing autophagy related cell death.

Related Articles A novel mTOR activating protein protects dopamine neurons against oxidative stress by repressing autophagy related cell death. J Neurochem. 2010 Jan;112(2):366-76 Authors: Choi KC, Kim SH, Ha JY, Kim ST, Son JH Our previous microarray...

Published 6 Feb 2010 4:40 AM by pubmed: neuroblastoma

Filed under: J Neurochem