Home - The Neuroblastoma Foundation

There is nothing quite as devastating as hearing that word - neuroblastoma. In seconds your world is turned upside down and your normal life is but a distant memory. You are thrust into a confusing world full of fear. Your child has cancer.

We know. We have been there. The Neuroblastoma Foundation is here for you.

Welcome to our website. It is a place for you to find answers and ask questions. One of the primary goals of the Neuroblastoma Foundation is to ensure that parents, patients and health care professionals find the information they need to make the best treatment decisions possible for children and adults affected by neuroblastoma. There is a vast amount of information throughout .. more

Videos Watch videos about neuroblastoma created just for you.

Seminars (next - 4/7/2010) Participate in online seminars on important treatment topics.

Articles Articles on neuroblastoma treatment for patients and families.

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Do you have questions but feel like you have no answers? Do you have a question but have been afraid to ask? Here, you can find the answers.

Join our neuroblastoma forums. Here you can ask questions and get the answers you really need. While you are there, talk with other parents that are going through your very same journey. You will be amazed at what you will find.

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Neuroblastoma and Liver Lesions

Liver lesions are a relatively common finding on follow up scans for children with high risk neuroblastoma. While they certainly are not found on every child, there are some that will experience this scary finding. It occurs frequently enough that we thought it would be helpful to write an article which details what you need to know - both about liver...

Published 24 Aug 2010 4:30 AM by Mark Dungan

Filed under: Neuroblastoma, chemotherapy, side effect, liver lesions
Video on NANT Clinical Trials Available

The video recording of Dr. Judy Villablanca's presentation of "An Overview of NANT Clinical Trials - part 1" is now available online. You can watch it here: http://www.neuroblastomafoundation.org/blogs/seminars/archive/2010/02/08/overview-of-nant-clinical-trials-part-1.aspx

Published 2 Apr 2010 3:56 AM by Mark Dungan
Targeted Radiotherapy for Neuroblastoma with MIBG

Join us for a Webinar on April 7 Space is limited. Reserve your Webinar seat now at: https://www2.gotomeeting.com/register/202269403 Dr. Kate Matthay, New Approaches to Neuroblastoma Therapy (NANT) Consortium leader and pediatric oncologist from the University of California - San Francisco (UCSF) presents part 2 of the ongoing NANT clinical trial series...

Published 2 Apr 2010 3:05 AM by Mark Dungan

Filed under: NANT, Clinical Trials, New Approaches to Neuroblastoma Therapy, Kate Matthay, MIBG
An Update on New Approaches to NeuroblastomaTherapy (NANT) Clinical Trials

This webinar was recorded on February 16,2010 An Update on New Approaches to NeuroblastomaTherapy (NANT) Clinical Trials from Neuroblastoma Foundation on Vimeo . On February 16, 2010 an hour long presentation of Part 1 of the New Approaches to Neuroblastoma Therapy's (NANT) Clinical Trial Series was delivered online. This seminar covered the NANT's...

Published 21 Mar 2010 4:00 AM by Mark Dungan

Filed under: Zometa, NANT, Fenretinide, Clinical Trials, Judith Villablanca
Re: Resection options for relapse

Our daughter had her neuroblastoma resected when she was six. She is 18 now and it returned this last December. We were first told that they would not be able to get all of it out. After 12-14 hours of surgery Dr Nutchern told us he got it all. Texas Childrens in Houston is a very good place to take your child in this instance.

Published 17 Mar 2010 12:01 AM by s19flyer
Overview of NANT Clinical Trials - Part 1

This webinar was recorded on February 16,2010 An Update on New Approaches to NeuroblastomaTherapy (NANT) Clinical Trials from Neuroblastoma Foundation on Vimeo . Space is limited. Reserve your Webinar seat now at: https://www2.gotomeeting.com/register/798308411 Join us on February 16, 2010 for an hour long presentation of Part 1 of the New Approaches...

Published 8 Feb 2010 8:39 AM by Mark Dungan

Filed under: Zometa, NANT, Fenretinide, Clinical Trials, Judith Villablanca
Why Neuroblastoma Screening Doesn't Work

Late last week I read a great article on *** cancer screening. Of course, I read the article because my little word search of it also included the word ' neuroblastoma .' Regardless, the article brought up some very important points that I think are often missed by parents of a child with neuroblastoma . The subject is this neuroblastoma screening...

Published 26 Jan 2010 8:58 AM by Mark Dungan

Filed under: Neuroblastoma, screening
Ginkgo biloba extract ameliorates oxidative phosphorylation performance and rescues abeta-induced failure.

Related Articles Ginkgo biloba extract ameliorates oxidative phosphorylation performance and rescues abeta-induced failure. PLoS One. 2010;5(8): Authors: Rhein V, Giese M, Baysang G, Meier F, Rao S, Schulz KL, Hamburger M, Eckert A BACKGROUND: Energy...

Published 3 Sep 2010 5:10 AM by pubmed: neuroblastoma

Filed under: PLoS One
Expression patterns of microRNAs are altered in hypoxic human neuroblastoma cells.

Related Articles Expression patterns of microRNAs are altered in hypoxic human neuroblastoma cells. Pediatr Surg Int. 2010 Aug 31; Authors: Yamagata T, Yoshizawa J, Ohashi S, Yanaga K, Ohki T BACKGROUND/PURPOSE: There was a report that microRNA (miRNA...

Published 3 Sep 2010 5:10 AM by pubmed: neuroblastoma

Filed under: Pediatr Surg Int
Involvement of p114-RhoGEF and Lfc in Wnt-3a- and Dishevelled-induced RhoA Activation and Neurite Retraction in N1E-115 Mouse Neuroblastoma Cells.

Related Articles Involvement of p114-RhoGEF and Lfc in Wnt-3a- and Dishevelled-induced RhoA Activation and Neurite Retraction in N1E-115 Mouse Neuroblastoma Cells. Mol Biol Cell. 2010 Sep 1; Authors: Tsuji T, Ohta Y, Kanno Y, Hirose K, Ohashi K, Mizuno...

Published 3 Sep 2010 5:10 AM by pubmed: neuroblastoma

Filed under: Mol Biol Cell